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Network to Enhance Diagnosis and Care of Children with Demyelinating Disease
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In 2006, the National MS Society established a nationwide network of six
Pediatric MS Centers of Excellence to provide comprehensive evaluation and
care to children and teens (up to age 18) with MS, and other related central
nervous system (CNS) demyelinating disorders. The centers were selected (through
a peer review process) on the basis of having multidisciplinary teams of adult and
child specialists; ties to an adult MS center; staff to evaluate and address school
and other psycho-social issues; support for families; and the ability to work
collaboratively with other institutions in the network.
The centers are working together to:
Families now have Society-supported resources for evaluation, diagnosis, medical
care and support. A child does not need to have a definite diagnosis of MS to be
evaluated at one of these sites. Children with symptoms suggestive of any CNS
demyelinating disorder will be seen.
A priority of this network is to provide comprehensive care to children with
central nervous system demyelinating conditions, regardless of ability to pay.
Financial assistance is also available for travel and accommodation according
to need.
The National MS Society helps each person address the challenges of living with
MS by funding cutting-edge research, driving change through advocacy, facilitating
professional education, and providing programs and services that help people with
MS and their families move their lives forward. In 2007 alone, through its
national office and 50 state network of chapters, the Society devoted over $136
million to programs that enhanced more than one million lives. To help move
closer to a world free of MS, the Society also invested over $50 million to
support 440 research projects around the world. Further information about the
National MS Society is available on its Web site at
www.nationalmssociety.org
People interested in more information on multiple sclerosis (either pediatric-onset
or adult-onset) may contact Arney Rosenblat at (212) 476-0436 or by e-mail
at arney.rosenblat@nmss.org.
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