Registry Sites
Alpha-1 Foundation
2937 SW 27th Avenue, Suite 302
Miami, FL        33133
Phone: (305) 567-9888
http://www.alphaone.org
Collaborative Studies Coordinating Center: UNC at Chapel Hill
137 E. Franklin Street, Suite 203
Chapel Hill, NC        27514-4145
Phone: (919) 962-6971
http://www.cscc.unc.edu
Lisa LaVange • Lisa.LaVange@mail.cscc.unc.edu • (919) 966-8333
Columbia University Medical Center - NY Presbyterian Hospital
630 West 168th Street
New York, NY        10032
http://www.nyp.org
Phone: (212) 305-2500
Byron Thomashow • bmt1@columbia.edu • (212) 305-1158
COPD Foundation
2937 SW 27th Avenue, Suite 302
Miami, FL        33133
Georgetown University Hospital
3800 Reservoir Road, NW
Washington, DC        20007
Anne O'Donnell • odonnela@gunet.georgetown.edu • (202) 444-8830
Mayo Clinic
200 1st Street SW
Rochester, MN        55905
Phone: (507) 284-2511
http://www.mayoclinic.com
Timothy Aksamit • aksamit.timothy@mayo.edu • (507) 284-4348
National Institute of Allergy and Infectious Diseases (NIAID)
6610 Rockledge Drive, MSC 6612
Bethesda, MD        20892-6612
Phone: (866) 284-4107
http://www3.niaid.nih.gov/
Kenneth Olivier • olivierk@niaid.nih.gov • (301) 496-5673
National Jewish Health
1400 Jackson Street
Denver, CO        80206
Phone: (303) 388-4461
http://www.njc.org
Charles Daley • DaleyC@NJHealth.org • (303) 398-1667
Oregon Health and Science University
3375 SW Terwilliger Blvd
Portland, OR        97239
Phone: (503) 494-7800
http://www.ohsu.edu
Alan Barker • barkera@ohsu.edu • (503) 494-7680
Kevin Winthrop • winthrop@ohsu.edu • (503) 494-7735
St. Luke's - Roosevelt Hospital Center at Columbia University
1000 10th Avenue, Suite 3A-55
New York, NY        10019
Phone: (212) 523-5471
http://www.wehealny.org
Fax: (212) 523-8426
Edward Eden • EEden@chpnet.org • (212) 523-7341
University of Illinois at Chicago College of Medicine
1740 West Taylor Street
Chicago, IL        60612
Dean Schraufnagel • schrauf@uic.edu • (312) 996-8039
University of North Carolina at Chapel Hill School of Medicine
301-A South Columbia Street
CB # 7000
Chapel Hill, NC        27599
Michael Knowles • knowles@med.unc.edu • (919) 966-6780
Veterans Administration
650 E. Indian School Road
Phoenix, AZ        85012
Phone: (602) 277-5551
http://www.va.gov/health
Richard Robbins • Richard.Robbins2@med.va.gov • (602) 277-5551