The Bronchiectasis Research Registry is a consolidated database of non-cystic fibrosis
(non-CF) bronchiectasis patients from multiple clinical institutions.
The goal of the Bronchiectasis Research Registry is to support
collaborative research and assist in the planning of multi-center
clinical trials for the treatment of non-CF bronchiectasis, a progressive, non-curable
disease of the lungs which afflicts thousands of patients. The Registry will also be
used to provide better insight into the diagnosis of the etiology of the different
types of bronchiectasis, as well as the pathophysiology of the disorder.
The registry is sponsored by the COPD Foundation and governed by the
Bronchiectasis Research Consortium, a group of scientists collaborating
to develop therapies to reverse, if not cure, non-CF bronchiectasis in
its various forms. The Bronchiectasis Research Registry Database was developed
and is maintained by the Collaborative Studies Coordinating Center in the
Department of Biostatistics, School of Public Health,
University of North Carolina at Chapel Hill.